The August 2017 COFAR Voice
Our August 2017 issue of The COFAR Voice newsletter is now online, with the following stories:
- Payments to professional guardians by DDS are characterized by a lack of transparency and accountability: A COFAR investigation
- The number of residents in state-operated group homes appears to be dropping in Massachusetts as funding for those critically important facilities continues to be cut.
- A developmentally disabled woman continues to be kept in isolation by DDS, and the media won’t report it.
- Nearly a year after the last sheltered workshops were closed in Massachusetts, two families are struggling with a new system that is confusing and is providing their loved ones with less meaningful activities.
- A Harvard researcher is helping to lead a major, multi-center study of the links between Down syndrome and Alzheimer’s disease.
- John Sullivan and Roland Charpentier, two tireless advocates for the developmentally disabled, have left us.
and much more.
We’ve updated our Advocacy Guide
If you are feeling overwhelmed by the complexities of the Department of Developmental Services (DDS) system in Massachusetts, or if you simply want more information about matters relating to the care of your loved ones in the system, we hope our Advocacy Guide can help. In it, you will find both tips and advice on care and services, eligibility issues, Individual Support Plans, guardianship, and other issues.
COFAR constructed this guide as part of our mission of providing advocacy information and advice to families and guardians of those with intellectual and other developmental disabilities, wherever they may live.
As of March 2016, we have updated the Guide to reflect changes in DDS regulations, and have added new information on issues ranging from guardianship to getting SSI and Medicaid benefits.
You can access the updated Guide by clicking here. We welcome your feedback!
COFAR is a statewide, nonprofit organization that advocates for choice in, and access to comprehensive and high-quality care for persons with intellectual and other developmental disabilities.
Through the efforts of our family members and volunteers, we advocate for adequate funding and staffing for residential and other programs provided by the Department of Developmental Services. We also provide advocacy information and advice to families and guardians of those with intellectual and other developmental disabilities, wherever they may live.